Latest news

  • NHSNational

    NIHR 2015/16 Research Activity League Table coming soon...

    27th September 2016

    The National Institute for Health Research (NIHR) Clinical Research Network (CRN) 2015/16 NHS research Activity League Table, showing the extent of research activity in NHS trusts in England is to be released on Tuesday 25 October 2016. The league table is published annually, and for the first time, will also detail the amount of commercial contract studies being delivered by each NHS trust.

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  • allan_Gaw_image.251x251jpgNational

    NIHR CRN 'Business of Discovery' podcast series launched

    15th September 2016

    The National Institute for Health Research (NIHR) Clinical Research Network (CRN) has today released its first podcast as part of a series of monthly audio bites to inform about the discovery of research.

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  • I4A Shout out251x251National

    Registration opens for 'Improving Healthcare through Clinical Research' MOOC

    6th September 2016

    The NIHR Clinical Research Network (CRN) recently announced the launch date for the next Massive Open Online Course (MOOC), to commence on 7 November 2016. Anyone interested in the course could register their interest, however, registration to sign up to the course, is now officially open.

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About Genetics Research

There are more than 7000 rare genetic disorders which collectively affect 1 person in 17.When viewed as a group, rare diseases are very common.The national approach made possible by the NIHR Clinical Research Network Portfolio, means we are able to collect together enough people with a particular condition to make a research project feasible. This leads to improved care and the development of new treatments.

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Patient, carer and public information

Patients are at the centre of our work. As a patient, carer or as a member of the public you can get involved by taking part in research, or by helping to shape research.

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Case studies

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Key contacts

  • General enquiries

    NIHR Clinical Research Network National Specialty Hub
    Newcastle University
    Biomedical Research Building (3rd Floor)
    Campus for Ageing and Vitality
    Newcastle upon Tyne, NE4 5PL


  • Specialty National Lead

    Dr Alex Henderson

  • Specialty Cluster Lead

    Professor Stuart Parker

  • Assistant Specialty Cluster Lead

    Gary Nestor

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