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  • Alun Evans 250 x 250

    “I am keen to do anything I can to help medical research”

    22nd July 2016

    Alun is taking part in a study to help people with Parkinson’s. Find out why he enjoys taking part in research.

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  • Louise McCarthy, Phil and Sue thumbnail

    CRN Eastern Research Nurse MADE the grade

    21st July 2016

    Making the decision to take part in dementia research can be a brave, complex and often selfless step for a patient to take, and the researchers supporting their trial journey are central to their experience.

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  • JDR_cmyk-01National

    Number of Alzheimer’s clinical trials almost doubles in 3 years

    19th July 2016

    According to latest figures, the number of drug trials to treat Alzheimer’s disease across the globe has almost doubled since 2013. This is great news, but this increase means that researchers are urgently seeking more people with memory problems to take part.

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About Dementias and Neurodegeneration research

The Clinical Research Network: Dementias and Neurodegeneration (DeNDRoN) supports the set up and delivery of clinical research in the NHS in a range of diseases including dementias, Parkinson’s disease, Motor Neurone Disease, Huntington’s disease and other neurodegenerative diseases such as ataxia.

These diseases are increasingly understood to have commonalities in underlying mechanisms, patient experience, and symptoms; and their management is increasingly multi-disciplinary and converging over time. Advances in understanding of these diseases and new treatments are likely to come from inter-disciplinary research between them.

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Patient, Carer and Public Information

We invite patients, carers and anyone affected by dementia and other neurodegenerative diseases to have a say on research matters. There are many ways that you can be involved in research; from participating in a study to helping to shape the direction of research by sharing your experiences or offering your opinion on research ideas.

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Case studies

  • Engaging global communities in research learning

    Enabling understanding of clinical research and its role in improving healthcare is a core objective in the Network. In 2015 the Network’s Workforce, Learning and Organisational Development team partnered with the Digital Learning team at Leeds University to develop a MOOC; ‘Improving Healthcare through Clinical Research’. The MOOC is free, and available to anyone wanting to learn about clinical research.

  • Bridging the gap

    Assessing a person with dementia in a research study requires a high level of skill and expertise. Having experienced raters available can affect whether the life-sciences industry choose to run a study in the UK. Insight Monthly investigates an innovative programme to increase the number of raters in the Clinical Research Network.

  • Maintaining the UK's leading edge

    Eight senior clinical academics joined the ranks of the Network in 2015 as Specialty Cluster Leads. Their role? To ensure that the UK remains at the forefront of clinical research so that NHS patients can continue to benefit from leading-edge treatments. Insight magazine learns why and how.

  • Patient stories

    Our 'Patient stories' campaign shows how people’s experiences are bringing research benefits to life and helping us to raise research awareness throughout England.

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Key contacts

  • General enquiries

    NIHR Clinical Research Network National Specialty Hub
    Newcastle University
    Biomedical Research Building (3rd Floor)
    Campus for Ageing and Vitality
    Newcastle upon Tyne, NE4 5PL

    E: crndementias@nihr.ac.uk

  • Specialty National Leads

    Professor John O'Brien (Dementias)

    Professor David Burn (Neurodegeneration)

  • Specialty Cluster Lead

    Professor Stuart Parker

  • Assistant Specialty Cluster Lead

    Gary Nestor

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