Dementias and Neurodegeneration (DeNDRoN)
The Dementias and Neurodegeneration (DeNDRoN) Specialty is one of 30 Specialties which bring together communities of clinical practice to provide national networks of research expertise. Our membership is made up of research-interested clinicians and practitioners at both national and local levels. Our job is to ensure that studies into dementia and neurodegeneration (including Parkinson’s disease, Alzheimer’s disease, Motor Neurone Disease and Huntington’s disease) that are included in our national portfolio of research receive the right support to make sure they are delivered successfully in the NHS.
About Dementias and Neurodegeneration research
The Clinical Research Network: Dementias and Neurodegeneration (DeNDRoN) supports the set up and delivery of clinical research in the NHS in a range of diseases including dementias, Parkinson’s disease, Motor Neurone Disease, Huntington’s disease and other neurodegenerative diseases such as ataxia.
These diseases are increasingly understood to have commonalities in underlying mechanisms, patient experience, and symptoms; and their management is increasingly multi-disciplinary and converging over time. Advances in understanding of these diseases and new treatments are likely to come from inter-disciplinary research between them.
Patient, Carer and Public Information
We invite patients, carers and anyone affected by dementia and other neurodegenerative diseases to have a say on research matters. There are many ways that you can be involved in research; from participating in a study to helping to shape the direction of research by sharing your experiences or offering your opinion on research ideas.
Enabling understanding of clinical research and its role in improving healthcare is a core objective in the Network. In 2015 the Network’s Workforce, Learning and Organisational Development team partnered with the Digital Learning team at Leeds University to develop a MOOC; ‘Improving Healthcare through Clinical Research’. The MOOC is free, and available to anyone wanting to learn about clinical research.
Assessing a person with dementia in a research study requires a high level of skill and expertise. Having experienced raters available can affect whether the life-sciences industry choose to run a study in the UK. Insight Monthly investigates an innovative programme to increase the number of raters in the Clinical Research Network.
Eight senior clinical academics joined the ranks of the Network in 2015 as Specialty Cluster Leads. Their role? To ensure that the UK remains at the forefront of clinical research so that NHS patients can continue to benefit from leading-edge treatments. Insight magazine learns why and how.
Our 'Patient stories' campaign shows how people’s experiences are bringing research benefits to life and helping us to raise research awareness throughout England.
NIHR Clinical Research Network National Specialty Hub
Biomedical Research Building (3rd Floor)
Campus for Ageing and Vitality
Newcastle upon Tyne, NE4 5PL
Specialty National Leads
Professor John O'Brien (Dementias)
Professor David Burn (Neurodegeneration)
Specialty Cluster Lead
Professor Stuart Parker
Assistant Specialty Cluster Lead