Young Person’s Advisory Group
The Children Specialty’s Young Person’s Advisory Group was set up in 2006 with the support of the National Children’s Bureau. The aim of the group is to increase the input and influence of children and their families/carers into the development of clinical research. Here’s a short animation to give an insight into what we do:
YPAG now consists of five groups based in Liverpool, Birmingham, London, Bristol and Nottingham. They are all made up of 10-15 members who are aged between 8-19.
The groups meet every six weeks either at weekends, in the evenings, or during school holidays and come together for a national meeting once a year.
The views and opinions expressed by the group feeds into the Children Specialty’s Consumer Involvement Steering Group and Board.
Role of the group
YPAG supports the clinical research community in a range of different ways:
- Helps researchers with their projects
- Works with external organisations such as the Medicines and Healthcare products Regulatory Agency (MHRA) , NIHR Central Commissioning Facility (CCF), National Research Ethics Service (NRES) and INVOLVE
- Raises research awareness amongst young people (through summaries)
- Design and deliver national conferences to highlight the importance of children’s research and the key role they can play in its development
- Carry out their own research projects
- 2013 GenerationR event – YPAG designed and delivered a national event aimed at the life-sciences industry. The aim was to give the commercial clinical research community an insight into the positive impact young people can have on the design and delivery of clinical research. You can find out more about the meeting through the GenerationR report, or watch the meeting on Youtube.
- Developed guidance for researchers designing Patient Information Leaflets
- Royal College of Paediatrics and Child Health (RCPCH) Consultation – ‘Young people’s views on payments for participating in health research.’
- Ambassador work – YPAG Official Launch and Radio 4 ‘Frontiers’ programme