Latest news from the Clinical Research Network

  • Research into rare bone disease takes treatment a step forward for patients

    Alkaptonuria (AKU), also known as black bone disease, is one of 6,000 diagnosed rare diseases and is so rare that currently there are only 64 patients in the UK that are known to have it. Until recently, little has been known about the best way to treat AKU but research is now underway to understand more about the disease and its treatment options.

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  • Ground-breaking new national service empowers public to take part in vital dementia research

    A new nationwide online and telephone service that helps people to take part in dementia research studies launched yesterday (24 Feb 2015).

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  • Linking you to UK Life Sciences

    A new UK Life Sciences web portal has been launched to provide information about the UK Life Sciences landscape. The initiative is led by UKTI’s Life Sciences Organisation (LSO) and the Office for Life Sciences (OLS) and will provide an online platform to allow UK and international companies, academia and R&D organisation to connect.

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Case studies

  • Join dementia research: match-making volunteers with research

    CRN: North Thames and CRN: North West London have been evaluating a new, soon to be nationwide service, which will make it easier for people to register their interest in taking part in dementia research and match people to suitable studies across the country.

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  • Research into treatment for rare bone disease takes a step forward for patients

    Alkaptonuria (AKU), also known as black bone disease, is one of 6,000 diagnosed rare diseases and is so rare that currently there are only 64 patients in the UK that are known to have it. It’s a genetic disease caused when both parents pass the AKU gene to their children.

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  • A valuable legacy: Service user and carer involvement in CRN: Mental health

    The Mental Health Research Network (MHRN) was set up in 2003. On 1 April 2014, its functions were taken over by the new Clinical Research Network: Mental health specialty. We interviewed some the people who were key to the development of service user and carer involvement in the MHRN, to ask about its history and their hopes for the future.

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